Privacy Policy


Black Health Initiative (BHI) promises to respect any personal data you share with us and keep it safe.  We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect.

Developing a better understanding of our service users/ members/ visitors through their personal data allows us to make better decisions and provide services and programmes in line with our aims and objectives.  Our marketing communications include information about the work of Black Health Initiative (BHI) and news about upcoming events/ programmes/ projects/conferences.

Who we are

Black Health Initiative (BHI) is a COMMUNITY ENGAGEMENT organisation working towards equality of access to Health and Social Care within Leeds and surrounding areas.


What personal data we collect and how we use it


The type and quantity of information we collect and how we use it depends on why you are providing it.


Supporters / Service Users / Visitors


If you support us, for example, make a donation, volunteer, register to attend events and conferences, sign up for focus groups or regular information updates, we will usually collect:

  • Your name
  • Your contact details i.e. email address, telephone number, home address
  • Your date of birth


Where it is appropriate we may also ask for:

  • Information relating to your health (for example if you are health-focused event)

We will mainly use your data to:

  • Provide you with the services or information you asked for
  • Administer your donation or support your fundraising
  • Keep a record of your relationship with us
  • Ensure we know how you prefer to be contacted
  • Provide you with information about our work or our activities
  • Understand how we can improve our services or information
  • For internal record keeping, such as the management of feedback or complaints;



Sharing your story


Some people choose to tell us about their experiences with cancer and other health-related issues / interaction with our partner groups/ feedback and evaluation for events attended and services provided/ to help further our work.  They may take on a role as an Ambassador or Volunteer at our events. This may include them sharing sensitive information related to their health and family life in addition to their biographical and contact information.

Black Health Initiative (BHI) may use some of the information provided, including gender, ethnicity or the type of experience to tailor our support and activities.  Black Health Initiative (BHI) will also monitor the types of people who are involved to ensure that the views we hear are representative of all people accessing the services of Black Health Initiative (BHI).

If Black Health Initiative (BHI) have the explicit and informed consent of the individuals, or their parent or guardian if they are under 18, this information may be used in publicity by us in materials promoting our campaigning and grant-funded applications/work, or in documents such as our annual report or newsletter.


Support / Counselling for individuals


Black Health Initiative (BHI) provide support / Counselling to individuals and collect personal data in order to provide appropriate support and services.  Black Health Initiative (BHI) may collect sensitive personal data about you when you contact us by email, telephone or in person.  This information will be used to answer your questions and give the appropriate support.  Black Health Initiative (BHI) may also collect and retain your information if you send feedback about our services or make a complaint.



Direct Marketing


With your consent, Black Health Initiative (BHI) will contact you to let you know about the progress we are making with our campaigns, new programmes and to ask for other support.  Occasionally, Black Health Initiative (BHI) may include information from partner organisations or organisations who support us in these communications.  Black Health Initiative (BHI) make it easy for you to tell us how you want us to communicate, in a way that suits you. If you don’t want to hear from us, just let us know when you provide your data or contact at

Black Health Initiative (BHI) do not share personal details to third parties for the purpose of marketing.  But, if Black Health Initiative (BHI) run an event in partnership with another named organisation your details may need to be shared. Black Health Initiative (BHI) will be very clear what will happen to your data when you register.


The accuracy of your information


Black Health Initiative (BHI) aim to ensure that all information we hold about you is accurate and, where necessary, kept up to date. If any of the information Black Health Initiative (BHI) hold about you is inaccurate and either you advise us or we become otherwise aware, we will ensure it is amended and updated as soon as possible.


Storing your information


Black Health Initiative (BHI) will keep your information for as long as required to enable us to operate our services but we will not keep your information for any longer than is necessary. When Black Health Initiative (BHI) no longer need to retain your information we will ensure it is securely disposed of, at the appropriate time.




Black Health Initiative (BHI) website may include links to other sites, not owned or managed by us. Black Health Initiative (BHI) cannot be held responsible for the privacy of information collected by websites not managed by Black Health Initiative (BHI).


Changes to this policy


We may change our privacy policy from time to time so please check back periodically.

This Privacy Policy was last updated May 2018.